- Bone Marrow Aspiration
- Lumbar Puncture with Chemo
- CBC and culture blood tests
- Discussion of installing a port
- Physical Therapy
- Addressing the cough that has progressively gotten worse since his diagnosis
These are the major items that we will discuss tomorrow. I will give you a full update as soon as I can.
Some things that have happened over the past week.
- Lucas has lost 75% of his hair. We have resorted to lint rollers to keep it off of him as well as us
- He is walking, but has extreme neuropathy in his legs. It is very difficult for him to walk as he can't feel the ground beneath him which causes him to lose his balance.
- He is getting his appetite back and is eating more than just rice!!
- He helps us flush his PICC every day by giving me the syringes I need
- He has thrown up so much in the last month, he now knows when it is going to happen and will tell us
- He has smiled and laughed more this week alone than he has in the last 6 weeks.
I have cried every day this week and now while I type this, the tears come again. I hate to see my son in so much pain and would trade my life to make him better tomorrow and take away this cancer. We still have a very long road ahead of us especially because of the Philadelphia positive diagnosis.
Thank you again for all of your thoughts and prayers. The picture above gives you a glimpse of his happy times during the day.
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